Your cancer survivorship care plan

A cancer survivorship care plan is a document that records information about your cancer experience. It also includes details about your current health. It can include information on:

Your cancer history:

• Your diagnosis
• The names of your health care providers and the facilities where you received treatment
• Results of all your cancer tests and treatments
• Information on any clinical trials you took part in

Your ongoing care after cancer treatment:

• Types and dates of provider visits you will have
• Follow-up screenings and tests you will need
• Recommendations for genetic counseling, if needed
• Symptoms or side effects you have had since your cancer treatment ended and what to expect
• Ways to care for yourself, such as through diet, exercise habits, counseling, or stopping smoking
• Information about your legal rights as a cancer survivor
• The risks of recurrence and symptoms to watch for in case your cancer returns

A cancer survivorship care plan serves as a complete record of your cancer experience. It helps you keep all of that information in one place. If you or your provider needs details about your cancer history, you know just where to find them. This can be helpful for your ongoing health care. And if your cancer returns, you and your provider can easily access information that could help in planning your future treatment.

You may be given a care plan once your treatment ends. You may want to ask your doctor about it to make sure you receive one.

There are also templates online you and your provider can use to create one:

• American Society of Clinical Oncology and American Cancer Society -- www.cancer.org/cancer/survivorship/long-term-health-concerns/survivorship-care-plans.html

Make sure you and your providers keep your cancer survivorship care plan up-to-date. When you have new tests or symptoms, record them in your care plan. This will ensure you have the most current information about your health and treatment. Be sure to bring your cancer survivorship care plan to all of your provider visits.

American Cancer Society website. Survivorship: during and after treatment. www.cancer.org/cancer/survivorship.html. Accessed August 29, 2024.

American Society of Clinical Oncology website. Cancer survivorship blueprint aims to improve lives of both survivors and caregivers. www.cancer.org/research/acs-research-news/cancer-survivor-blueprint.html. Updated March 8, 2019. Accessed September 30, 2024.

Rowland JH, Mollica M, Kent EE, eds. Survivorship. In: Niederhuber JE, Armitage JO, Kastan MB, Doroshow JH, Tepper JE, eds. Abeloff's Clinical Oncology. 6th ed. Philadelphia, PA: Elsevier; 2020:chap 49.

Updated by: Warren Brenner, MD, Oncologist, Lynn Cancer Institute, Boca Raton, FL. Review provided by VeriMed Healthcare Network. Also reviewed by David C. Dugdale, MD, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team.