The following organizations are good resources for information on scleroderma:
- Genetic and Rare Diseases Information Center -- rarediseases.info.nih.gov/diseases/9748/systemic-scleroderma
- National Institute of Arthritis and Musculoskeletal and Skin Diseases -- www.niams.nih.gov/health-topics/scleroderma
- National Organization for Rare Disorders -- rarediseases.org/rare-diseases/scleroderma/
- Scleroderma Foundation - scleroderma.org
- Scleroderma Research Foundation -- srfcure.org/
- US National Library of Medicine, Genetics -- medlineplus.gov/genetics/condition/systemic-scleroderma/
Alternative Names
Resources - scleroderma
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Review Date 2/5/2023
Updated by: Jennifer K. Mannheim, ARNP, Medical Staff, Department of Psychiatry and Behavioral Health, Seattle Children's Hospital, Seattle, WA. Also reviewed by David C. Dugdale, MD, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team.