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How can I find a genetics professional in my area?

To find a genetics professional in your community, you may wish to ask your doctor for a referral. If you have health insurance, you can also contact your insurance company to find a medical geneticist or genetic counselor in your area who participates in your plan.

Several organizations have tips for finding a healthcare professional:

  • The Genetic and Rare Diseases Information Center, a service of the National Institutes of Health, provides a guide to finding specialists in particular genetic and rare conditions.From the National Institutes of Health

  • The Tuberous Sclerosis Alliance provides advice on finding and choosing a clinic. Although this advice is written for adults with tuberous sclerosis, much of it applies to people with any chronic health condition.

Additional resources for locating a genetics professional in your community are available online:

If you have a health condition that has not been diagnosed, you may be interested in the Undiagnosed Diseases Network. They have information about how to apply for this multicenter research study.

The information on this site should not be used as a substitute for professional medical care or advice. Contact a health care provider if you have questions about your health.