The following organizations provide information on Tay-Sachs disease:
- Genetic and Rare Diseases Information Center -- rarediseases.info.nih.gov/diseases/7737/tay-sachs-disease
- National Human Genome Research Institute -- www.genome.gov/Genetic-Disorders/Tay-Sachs-Disease
- National Organization for Rare Disorders -- rarediseases.org/rare-diseases/tay-sachs-disease/
- National Tay-Sachs & Allied Diseases Association -- ntsad.org
- US National Library of Medicine, Medline Plus -- medlineplus.gov/genetics/condition/tay-sachs-disease/
Alternative Names
Resources - Tay-Sachs
Review Date 2/5/2023
Updated by: Jennifer K. Mannheim, ARNP, Medical Staff, Department of Psychiatry and Behavioral Health, Seattle Children's Hospital, Seattle, WA. Also reviewed by David C. Dugdale, MD, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team.