The following organizations provide information on Tay-Sachs disease:
- US National Library of Medicine, Genetics Home Reference -- medlineplus.gov/genetics/condition/tay-sachs-disease/
- Genetic and Rare Diseases Information Center -- rarediseases.info.nih.gov/diseases/7737/tay-sachs-disease
- National Human Genome Research Institute -- www.genome.gov/Genetic-Disorders/Tay-Sachs-Disease
- National Tay-Sachs & Allied Diseases Association -- www.ntsad.org/
- National Organization for Rare Disorders -- rarediseases.org/rare-diseases/tay-sachs-disease/
Alternative Names
Resources - Tay-Sachs
Review Date 3/16/2021
Updated by: Jennifer K. Mannheim, ARNP, Medical Staff, Department of Psychiatry and Behavioral Health, Seattle Children's Hospital, Seattle, WA. Also reviewed by David Zieve, MD, MHA, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team.