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Steady Advances Against Cystic Fibrosis

Cystic Fibrosis Research

"Remarkable strides in cystic fibrosis research over the past two decades have culminated in CF treatments that target the underlying cause of disease and help children born with the disorder to live much longer," says Dr. Gary H. Gibbons, the new director of the National Heart, Lung, and Blood Institute. "In the coming years, the fundamental knowledge that we've gained about the biology of CF offers great promise to not only further improve the quality of life for those with CF, but may also accelerate the development of therapies designed to preempt the debilitating consequences of this genetic disorder."

—Dr. Gary H. Gibbons, Director of the National Heart, Lung, and Blood Institute

National Heart, Lung, and Blood Institute (NHLBI)-supported research has led to a better understanding of the causes and complications of cystic fibrosis and to advances in treatment.

NHLBI-supported research includes studies on:

  • The role of genes in CF-related lung disease.
  • Different treatment options for treating lung infections in children.
  • How medicines and other therapies can help treat CF and improve quality of life.
  • How the disease proceeds within the lung.
  • Methods to detect and prevent CF lung disease.

Clinical Trials

Much of this research depends on the willingness of volunteers to take part in clinical trials. These test new ways to prevent, diagnose, or treat various diseases and conditions.For example, new medicines, medical devices, surgeries, or procedures are tested in volunteers who have the illness, such as CF. The testing is to determine whether a treatment is safe and effective before it is made available for widespread use.

By taking part in a clinical trial, you can gain access to new treatments before they're widely available. You also will have the support of a team of health care providers, who will likely monitor your health closely. Even if you don't directly benefit from the results of a clinical trial, the information gathered can help others and add to scientific knowledge.

For more information about clinical trials related to CF, talk with your health team. You also can visit the following Web sites to learn more about clinical research and to search for clinical trials:

For more information about clinical trials for children, visit the NHLBI's Children and Clinical Studies web page.

Read More "Cystic Fibrosis" Articles

Steady Advances Against Cystic Fibrosis / Symptoms, Diagnosis, Treatment / Living with Cystic Fibrosis / Cystic Fibrosis Research

Fall 2012 Issue: Volume 7 Number 3 Page 10